Category Archives: Update

Well, we have what they call “a setback”. I woke up this morning to a doctor saying, “We’re not going to extubate him this morning.” Before I opened my eyes I thought, “Please God, let that be the other kid, … Continue reading →

Alright, well I wanted to post an update even if there isn’t too terribly much to say. I guess it does include a prayer request. Basically we spent today trying to prepare Eli for being taken off of the respirator … Continue reading →

Well, a pretty non eventful day except that they cut out the paralytic medicine on Eli, so he’s moving around a lot more. Still sedated, so not really awake or responding, but moving his limbs around. They turned his respirator … Continue reading →

Well, a pretty non eventful day except that they cut out the paralytic medicine on Eli, so he’s moving around a lot more. Still sedated, so not really awake or responding, but moving his limbs around. They turned his respirator … Continue reading →

Ok, sorry I’m down to nightly updates, but that’s about the best I can do at this point. Eli is obviously still in the PICU. Things are progressing, but slowly. The head peds doctor said that wasn’t uncommon. They are … Continue reading →

Ok, I don’t really want to take too long updating this, but wanted to take some time to thank everyone for all of their prayers yesterday and to make sure nobody has stopped. 😀 We had our consult with Dr. … Continue reading →

One thing that shocked us is that he was actually coming out of his sedation last night. Enough to open his eyes when he heard our voices and respond to questions by shaking his head yes or no. This told … Continue reading →

So our first full day in NY is under our belts. This is going to break the 4k character limit and take 2 posts, so don’t forget to move on to the next one for the end. We met with … Continue reading →

So, tomorrow is the big day. They had us scheduled to come in at 6:15am, but then something got bumped and now we need to be there at 7:30am. We’re guessing anywhere from 7-12 hours for the surgery, but it … Continue reading →

New York City? For some reason the Pace Picante commercial came to mind just now. Yeah, New York City. Upper East Side Manhattan to be exact. 405 East 73rd Street to be even MORE exact. Here we are, in the … Continue reading →