Just a quick update that I will start out with some praise. Eli’s MIBG and both MRIs came back normal! Now we wait for his urine tests and his bone marrow results. We also have a change of plans regarding our timeline. Instead of starting the trial dose of 8H9 next week, Dr. Kramer wanted to wait a week and see what Eli’s platelets were going to do. His counts are good, but his platelets continue to drop. Today they were 67. So since we are delayed a week, we are going to head home tomorrow and then return on 7/21 for his 8H9 test dose on 7/22. Then his real dose will be 7/29 and we SHOULD be able to return home again on the 31st. Yes, Eli has to do another test dose before the “real dose” again. That is normal protocol for 8H9. After this round of 8H9, Eli is done with that antibody! We will test him for HAMA and if he is still HAMA positive, we will do some chemo to try to get that HAMA level down. If he’s not HAMA positive, we’ll go right back into 3F8s.
Eli is squeezing out every last second of play time with his buddies at the Ronald McDonald House, but we’re excited to know we’ll be sleeping in our own beds once again tomorrow night, God willing! As always, thank you all for your continued prayers for Eli as well as for his little friends. Please keep Caden Ledbetter (http://www.caringbridge.org/visit/cadenledbetter) in your prayers as they found out today that his disease is progressing, to the point of him having an arm fracture from all of the Neuroblastoma. The Ledbetter’s are a wonderful Christian family from Texas and we are praying that they will be able to have peace about their upcoming decisions regarding Caden’s next steps in treatment.
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