I know I just updated last night, but I had something cool to share today. You will recall that our New York Grandma Barbara from Candlelighters, NYC threw a big St. Baldrick’s fundraiser bash with an accomplice (Jodi) on March 17th. Their event raised over $149,000 for pediatric cancer research! Well over their goal of $100,000. They had some really great supporters!
We were home during the event, so we felt like we really missed out on a good time. I got to live vicariously through photos that I received from Barbara and put together a few Animoto videos with them. I launched them the other day and found out that one of them was actually the #10 Most Viewed video of the day on YouTube in the Non Profit category! How cool! I thought you’d all like to check them out here and see some of the great before and after shots from the event. Sorry to anyone at work that can’t view these because of video stream blocking. Gotta protect that precious bandwidth for business use! 🙂
Before And After
Photos from the Event
Eli did a really good job today. He found some comfort in singing during the pain. It was more like humming since there weren’t any words, and it was often interrupted by screams of pain, but I thought it was a great way for him to deal with the pain and take himself to another place. My arm certainly likes it better than the pinching! 🙂
Eli’s hallucinations have been very vivid the last few days. He will say things like, “Hey guys, I wasn’t done with that gum yet!” or “That thing Isaiah is playing with used to be mine,” when Isaiah isn’t even in the room. He also wakes up terrified sometimes because he thinks he is falling off the bed. They say that the pain meds sometimes make the kids feel like they are falling.
A few times Eli would say, “I hate this. I hate the pain.” Hate isn’t a word we use at our house, but this is one time I have no problem with him using it. I hate it too. I hate watching it, I hate approving it’s administration, I hate that it has to happen at all. However, I’m very thankful for it. I’m thankful for the technology, the medication, the progress, the faculty, and I’m thankful that the pain means the medicine is doing its thing. Most of all, I’m thankful for the prayers. We all are.
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